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Christi in OH
11-01-2009, 07:23 PM
Any ideas what would be causing Ronnie to loose sounds and words? Last year she could very clearly say "trick or treat" this year it was so garbled I thought she was muttering something about Christmas. I feel bad because I didn't realize what she was saying until Halloween day. :sad:

There have also been other words she has "lost" or can't say any more. Everyone who has evaluated her says she is preverbal. I hear her saying well into the hundreds of words and putting words together. She just is hard to understand unless you are around her alot. I even have trouble sometimes especially if it is out of context.

Just wondering if anyone has any ideas what could be causing this word loss and if there is anything I could do to help her. :unsure:

Alice R
11-01-2009, 07:44 PM
I have not heard of this with a child with DS.

I will think about it and see if I remeber anything.

ChristineM
11-04-2009, 08:06 AM
Any chance of hearing loss?

Hollie in SC
11-04-2009, 08:24 AM
Noah has dropped words, too. He used to say milk and some other words around age 3 that he stopped saying over time. However, he has added other words.


I know that a toddler may lapse in a skill when focusing on something else. I always wondered if there is similar going on. :unsure: He is at the ENT and audiologist often so I know it isn't that.

Alice R
11-04-2009, 09:05 AM
I know that a toddler may lapse in a skill when focusing on something else.

That is the only thing that I can think of. When a child is developing in one area, sometimes the other area takes a backseat.

It's common for children to start walking and then slow down with the talking.

Other than that...nothing comes to mind.

Have you checked for fluid in the ears?

Christi in OH
11-04-2009, 09:49 AM
I hadn't thought of either of those things. She has had a stuffy nose for over 2 weeks now, she has never had any trouble with her ears.

I don't know about developmentally on other things, but that could be it too. Hmmm.

Thanks!

Shannon P
11-05-2009, 11:59 PM
DS carries an increased risk of hearing impairment, though I'm not sure if it's separate or associated with occurrences of facial malformations. A full hearing evaluation might be worthwhile to rule it out.

Has she been doing any new therapies in that time? I've heard of children regressing when a therapy begins, or when it wasn't appropriate or wasn't performed properly.

Chalane (FL)
12-02-2009, 10:53 PM
Does she have ear infections often or ear tubes? Joey (ds-9) is very dif. to understand and I had his hearing checked using ABR (audio brain response-I think) since he couldn't understand what to do during a regular hearing test. Turned out he had mild to moderate hearing loss. I should mention he'd had ABR as a baby and they had been normal. You may want to ask the ENT about it, don't be surprised if the ins. co. insists on trying a regular booth test 1st. and she may need to be sedated if they do an ABR.