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Leslie Nelsen
03-14-2007, 02:25 AM
Hi All

I wanted to update ya'll on what is going on with Eliana. You have been so faithful to encourage and pray for us. I'm so very thankful for that! :group:

We had a bit of a rough time yesterday with Eliana spitting up her feeds. Her heart is working extra hard and after today her meds will be increased to help deal with the extra fluid in her heart/lungs which will hopefully help her heart not have to work quite so hard.

Weight - She has gained again! :hop: :hop: She is up to 10 pounds and 2 ounces. :D That is 7 ounces from last week. (Some of this is probably fluid retention that will be lost after the increase in meds, but she is still going in the right direction!)

Surgery - We have been told that she has about 2 to 4 weeks and that we need to pick some dates. Oh, now I really do have to think about what lies ahead - not just in the abstract either. We'll probably look to early April but haven't had a chance to sit down and talk it over.

Adhesive - So many of you were helpful when I asked about the bandages irritating Eliana's skin. I was told initially just to switch side for her tube/bandages which did help. After yesterdays changing of the bandage though her poor little cheek looked bad. :( It's hurt. Today the cardiologist gave me duoderm to put on under the bandage and I'm hopeful that it will help! Thanks for all of the advice so that I knew what to ask for!

Blog - I've written out more here in case you want to read more details. I'll definitely keep you all posted.

http://www.homeschoolblogger.com/LeslieNelsen/

Thank you for your prayers and encouragment!

With love,

Amanda
03-14-2007, 02:49 AM
Leslie :clap: what great news about Eliana's weight gain :hop:

I will continue to pray,pray,pray! :group:

Scarlett
03-14-2007, 05:53 AM
Great news about Eliana's weight gain! And I am keeping you and all your needs in my prayers. :group:

Olivia
03-14-2007, 06:23 AM
Glad to hear the good news and I'll keep on praying.

mariah m
03-14-2007, 06:37 AM
Glad to hear her weight is up! Continuing to pray for all of you :group:

normafl
03-14-2007, 07:06 AM
Leslie, so nice to hear of her weight gain yea.... Praying for you all! Norma

Shelley
03-14-2007, 07:18 AM
:clap: for the weight gain.

Jill S
03-14-2007, 07:31 AM
So glad to hear about the weight gain, but it's almost hard to read that surgery is within the next month. Even knowing that it's what she really needs, and praise the Lord for giving you great surgeons who can help... I'll keep praying for her and for you and your family. You're doing an amazing job with her Leslie.

Barb Cash
03-14-2007, 07:36 AM
So thankful your sweet girl is gaining!! We continue to pray for you all! :group: Give Eliana a kiss from Auntie Barb! :kiss:

Love you,

Hollie in SC
03-14-2007, 07:38 AM
Oh, Leslie, I'm so happy she gained. We love you and we're praying!

Esther-Alabama
03-14-2007, 08:01 AM
Great news!! So glad you got some duoderm to protect her little check.

I was reading on your blog and wanted to suggest that when placing the tube and it feels stuck...try twisting it gently (like a screw twists). Sometimes this helps it make the turn downward as you place it. HTH.

Katie
03-14-2007, 08:19 AM
Rejoicing with you in Eliana's weight gain! \o/

We thank God for your sweet baby girl and are so very honored to be praying for her as well as your whole family! Thank you for keeping us updated!

With much love,
Katie

:group:

Leslie Nelsen
03-14-2007, 08:21 AM
Great news!! So glad you got some duoderm to protect her little check.

I was reading on your blog and wanted to suggest that when placing the tube and it feels stuck...try twisting it gently (like a screw twists). Sometimes this helps it make the turn downward as you place it. HTH.

Thank you for this tip Esther! I just didn't know what else to do but to keep trying yesterday. It wasn't fun for either of us. :cry: It was just like hitting a wall (which I knew caused her to gag) but I didn't know what else to do but take it out and try again. I'll try that next time! :group: It's so nice to have friends that are nurses. :)

Love,

Mary FL
03-14-2007, 09:25 AM
Thank you for the update!

Sarah in SC
03-14-2007, 12:39 PM
Leslie, you are amazing.

Eliana remains in our prayers, and so do you, sweet friend.

Wonderful news on her weight gain, and that you have a "fix" for the adhesive issue. Praying for you on the surgery decision. I'm so sorry you're going thru that hard, hard process.

Sending lots of love and many prayers,
Sarah

Missy
03-14-2007, 01:25 PM
Leslie, you are amazing.

Eliana remains in our prayers, and so do you, sweet friend.

Wonderful news on her weight gain, and that you have a "fix" for the adhesive issue. Praying for you on the surgery decision. I'm so sorry you're going thru that hard, hard process.

Sending lots of love and many prayers,
Sarah

:yes: same here, sweet Leslie. :group:

DD in IL
03-14-2007, 05:20 PM
Great news!

Missy =D
03-14-2007, 10:44 PM
:clap:

I just had to say that I looked through the pictures of your beautiful family and this sweet baby just radiates the light of the Lord. She is soooooooooooooo adorable :kiss: